|Read the Five-Star Reviews|
Fajgenbaum was still reeling from the death of his mother to an aggressive brain cancer when he began to experience mysterious flu-like symptoms. At first, he ascribed the overwhelming fatigue to the stresses of medical school and tried to power through it to complete his rotations and exams. When his condition rapidly deteriorated, landing him in a hospital's emergency department, the early indications and tests pointed to Lymphoma cancer.
While that diagnosis would have been a severe blow, the real blow was yet to come. There would be no quick identification of Fajgenbaum's mystery illness. With all of his major organs shutting down, death seemed imminent.
As a doctor in training, the author wasn't ready to give up hope. He kept noticing details of his extreme illness that others did not recognize as significant. One of Fajgenbaum's strengths was a laser-like focus born of what others deemed a disability (the hyperfocus variant of attention deficit/hyperactivity disorder). When he got hold of something that captured his attention, Fajgenbaum did not let go. In this case, that would be his eventual salvation.
After several weeks of multiple near-death experiences and debilitating pain, and after insisting on a lymph node biopsy, Fajgenbaum finally received his diagnosis: Castleman Disease. In nearly every respect, this medical sentence was much worse than the initial fears raised by a potential cancer diagnosis. Knowing what he was fighting did not make this an easy or fair fight.
To read Chasing My Cure, is to obtain an intimate glimpse into the world of living tenuously day to day. It will take you into the often perplexing universe of attempting to find a cure for a relentless, ruthless, incredibly complex disease. You will meet people of heart and courage who invoke a brand of hope that is invincible—and just as relentless as the enemy.
Fajgenbaum has not only had to fight the ultimate foe within his body. Equally daunting has been his mission to revolutionize the medical research field and to convince others that it takes a whole different approach when chasing down a cure for Castleman Disease. Attempting to change the deeply seated ways in which institutions, corporations, physicians, and researchers operate has been essential to this enterprise. To create this kind of change will be as critical as solving the mystery of the disease, for systems are often as much in need of cures as are the people they serve.
I encourage you to read this inspirational memoir of how hope, faith, and love accompany Fajgenbaum on his ultimate journey of discovery. This recently published book is consistently receiving five-star ratings. I believe that is so because this is much more than a story. It is a call to each of us to act on the kind of invincible hope that makes a true difference for others.
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